Skip to main content

VICC to host neurofibromatosis event April 21

Apr. 5, 2018, 11:28 AM

Vanderbilt-Ingram Cancer Center (VICC) will host a special event for patients and families affected by neurofibromatosis (NF), a genetic disorder that can cause tumors in the nervous system. The Neurofibromatosis Patient and Family Symposium will be held Saturday, April 21, 9 a.m. – 1 p.m., at the VICC 8th floor conference center in the Preston Research Building, 2220 Pierce Ave.

Neurofibromatoses are a group of genetic disorders which can cause a variety of symptoms, ranging from skin changes, bone abnormalities, hearing loss, balance issues, and brain or spinal tumors to cataracts at a young age. Treatment is designed to address symptoms of the disease.

During the VICC event, participants will learn about the diagnosis and monitoring of pediatric and adult patients, as well as Vanderbilt NF clinical and research programs and national and regional resources for patients and families. The symposium also will feature a panel discussion.

The event is free and open to patients no matter where they have received treatment. Lunch will be provided and free parking is available in the South Garage across from the cancer center.

To register for the event, visit www.viccnfsymposium.eventbrite.com or call 615-936-1793.

Recent Stories from VUMC News and Communications Publications

The first few minutes of Charlie’s life were a blur, as a team of doctors and nurses at VUMC worked to resuscitate him and stabilize his heart rate. He was then transferred to the Neonatal Intensive Care Unit at Monroe Carell Jr. Children’s Hospital at Vanderbilt.

Hope

The first few minutes of Charlie’s life were a blur, as a team of doctors and nurses at VUMC worked to resuscitate him and stabilize his heart rate. He was then transferred to the Neonatal Intensive Care Unit at Monroe Carell Jr. Children’s Hospital at Vanderbilt.

Tucked away in a Vanderbilt conference room, 36 adults huddle over Lego pieces. Eleven teams have been assigned to assemble multicolored Legos using the written directions included in the packet. The result should be a Frankenstein figure.

Vanderbilt Nurse

Tucked away in a Vanderbilt conference room, 36 adults huddle over Lego pieces. Eleven teams have been assigned to assemble multicolored Legos using the written directions included in the packet. The result should be a Frankenstein figure.

Marissa Benchea has CF, and she is one of hundreds of thousands of adults not only surviving but thriving with a chronic childhood disease.

Vanderbilt Medicine

Marissa Benchea has CF, and she is one of hundreds of thousands of adults not only surviving but thriving with a chronic childhood disease.

One hundred years ago, multiple “waves” of a deadly flu swept across the world.

Vanderbilt Medicine

One hundred years ago, multiple “waves” of a deadly flu swept across the world.

more