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Neurofibromatosis Clinic Archives

VICC to host symposium on neurofibromatosis April 21

Apr. 12, 2018—Vanderbilt-Ingram Cancer Center (VICC) will host a special event for patients and families affected by neurofibromatosis (NF), a genetic disorder that can cause tumors in the nervous system. The Neurofibromatosis Patient and Family Symposium will be held Saturday, April 21, 9 a.m. – 1 p.m., at the VICC 8th floor conference center in the Preston Research Building, 2220 Pierce Ave.

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Research participants needed for neurofibromatosis study focused on reading difficulties

Mar. 1, 2018—The Vanderbilt Education and Brain Sciences Research Lab is seeking participants age 8 to 20 for a research study focusing on reading difficulties and neurofibromatosis.

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Vanderbilt joins national neurofibromatosis network

Nov. 9, 2017—The Vanderbilt-Ingram Cancer Center Neurofibromatosis (NF) Clinic has joined the Children’s Tumor Foundation NF Clinic Network.

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Recent Stories from VUMC News and Communications Publications

Sharon Seibert is among the more than 5,000 patients who have received a stem cell transplant at Vanderbilt-Ingram Cancer Center, which has one of the best survival rates in the nation and is at the forefront of new cellular therapies.

Momentum

Sharon Seibert is among the more than 5,000 patients who have received a stem cell transplant at Vanderbilt-Ingram Cancer Center, which has one of the best survival rates in the nation and is at the forefront of new cellular therapies.

The first few minutes of Charlie’s life were a blur, as a team of doctors and nurses at VUMC worked to resuscitate him and stabilize his heart rate. He was then transferred to the Neonatal Intensive Care Unit at Monroe Carell Jr. Children’s Hospital at Vanderbilt.

Hope

The first few minutes of Charlie’s life were a blur, as a team of doctors and nurses at VUMC worked to resuscitate him and stabilize his heart rate. He was then transferred to the Neonatal Intensive Care Unit at Monroe Carell Jr. Children’s Hospital at Vanderbilt.

Tucked away in a Vanderbilt conference room, 36 adults huddle over Lego pieces. Eleven teams have been assigned to assemble multicolored Legos using the written directions included in the packet. The result should be a Frankenstein figure.

Vanderbilt Nurse

Tucked away in a Vanderbilt conference room, 36 adults huddle over Lego pieces. Eleven teams have been assigned to assemble multicolored Legos using the written directions included in the packet. The result should be a Frankenstein figure.

Marissa Benchea has CF, and she is one of hundreds of thousands of adults not only surviving but thriving with a chronic childhood disease.

Vanderbilt Medicine

Marissa Benchea has CF, and she is one of hundreds of thousands of adults not only surviving but thriving with a chronic childhood disease.

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