Undiagnosed Diseases Network Archives
Nov. 4, 2021—by Nancy Humphrey Vanderbilt University Medical Center has been named a National Organization for Rare Disorders (NORD) Center of Excellence, joining 31 medical centers as part of an innovative network seeking to expand access and advance care and research for rare disease patients in the United States. The Vanderbilt Undiagnosed Diseases Program (VUDP), which accepts...
Apr. 15, 2021—Vanderbilt University Medical Center, an original member institution of the National Institutes of Health’s Undiagnosed Diseases Network, (UDN) is launching its own program, the Vanderbilt Undiagnosed Diseases Program (VUDP), which will operate alongside the UDN. The VUDP goal is to expand services to many more patients who are living with the often-dire consequences of an undiagnosed disease.
Oct. 8, 2020—Though the COVID-19 pandemic halted in-person patient visits at Undiagnosed Diseases Network (UDN) sites, including Vanderbilt University Medical Center’s, since March, groundbreaking behind-the-scenes work continues.
Mar. 14, 2019—On July 6, 2017, the Krauter family of Hiawatha, Kansas, received a belated 4th birthday present for their younger daughter, Mady — a diagnosis for a host of worsening neurological symptoms that they first noticed when she was 3 months old.
Feb. 7, 2019—Certified genetic counselors (CGCs) are among the first faces that patients see once accepted into Vanderbilt’s Undiagnosed Diseases Network (UDN) where hopefully they will gain a diagnosis.
Sep. 27, 2018—by Nancy Humphrey Vanderbilt University Medical Center’s Undiagnosed Diseases Network (UDN), part of a clinical research initiative of the National Institutes of Health (NIH), has been funded by the NIH for another four years. The new funding cycle began Sept. 1. VUMC is one of seven sites around the country selected in 2014 that will...
Jun. 28, 2018—Jun. 28, 2018—The anonymous man being discussed in a conference room at Vanderbilt University Medical Center used to be healthy and athletic, but has suffered from slow progressive muscle weakness for some time and now uses a wheelchair to get around.
Mar. 2, 2017—It’s human nature to need answers. Patients with debilitating symptoms need a diagnosis — somewhere to place the blame, a starting point to search for answers.
Sep. 16, 2015—Eighteen-year-old Rachel Barnett of Robertson County is one of the first patients to be enrolled in the Undiagnosed Diseases Network (UDN) at Vanderbilt University Medical Center — one of seven medical centers around the country participating in a clinical research initiative of the National Institutes of Health to identify rare disorders in patients.
Jul. 1, 2014—Armed with a $7.2 million grant from the National Institutes of Health (NIH) Vanderbilt University Medical Center is one of six medical centers around the country selected to participate in a network to develop effective approaches for diagnosing hard-to-solve medical cases (undiagnosed diseases).