May 16, 2022

Attention families of children with neurofibromatosis Type 1 and families of children with reading difficulties

By: Kylie Avery

ATTENTION FAMILIES OF CHILDREN WITH NEUROFIBROMATOSIS TYPE 1

We are currently looking for individuals ages 8 to 20 with Neurofibromatosis Type 1 to participate in a research study. We are trying to learn more about the best ways to teach people to read.

WHAT WILL BE INVOLVED:

  • Comprehensive evaluation of reading-related skills at Vanderbilt University
  • 4 Magnetic Resonance Imaging (MRI) scans of the brain
  • If you or your child meets our study criteria for having problems with reading, you or your child may be invited to participate.
    • Participants with NF will be randomly assigned to one of two different groups.
      • 1: Reading tutoring program and a medication called Lovastatin
      • 2: Reading tutoring program and no Lovastatin (placebo)

Lovastatin is not approved by the Food and Drug Administration for the treatment of reading trouble due to Neurofibromatosis Type 1.

  • Parent and teacher questionnaires

WHAT YOU WILL RECEIVE FOR PARTICIPATING:

  • Travel reimbursement available for NF-1 families living outside middle TN area
  • Check for $150 for the first visit, $750 for the second visit, and $150 for the last visit.
  • Report of child’s performance on assessment measures (if first visit is completed)

 

ATTENTION FAMILIES OF CHILDREN WITH READING DIFFICULTIES

We are currently looking for individuals ages 8 to 20 with reading difficulties to participate in a research study. We are trying to learn more about the best ways to teach people to read.

WHAT WILL BE INVOLVED:

  • Comprehensive evaluation of reading-related skills at Vanderbilt University
  • 4 Magnetic Resonance Imaging (MRI) scans of the brain
  • If you or your child meets our study criteria for having problems with reading, you or your child may be invited to participate.
    • Participants will be randomly assigned to one of two different groups.
      • 1: Reading tutoring program
      • 2: No reading (sham) tutoring program
    • Parent and teacher questionnaires

WHAT YOU WILL RECEIVE FOR PARTICIPATING:

  • Check for $150 for the first visit, up to $500 for the second visit ($100 per day), and $150 for the last visit.
  • Report of child’s performance on assessment measures (if first visit is completed)
  • A picture of your child’s brain!

 

FOR MORE INFORMATION CONTACT:

Education and Brain Sciences Research Lab, Vanderbilt University

(615) 875-5534, educationbrain@vanderbilt.edu

 

 

Laurie E. Cutting, Ph.D., Principal Investigator

Vanderbilt University, Department of Special Education

 

Sponsored by the National Institutes of Health